About this event

  • Date and time Fri 11 Jul 2025 from 8:30am to 6:30pm
  • Location Royal Society of 51短视频
  • Organised by Rheumatology and Rehabilitation

Join us for an in-depth exploration of the links between Generalised Joint Hypermobility (GJH), hypermobility Ehlers-Danlos Syndromes (hEDS) and the closely related Hypermobility Spectrum Disorders (HSD), with post-COVID health complications, henceforth described as hypermobility. We will explore the concept of 鈥淏endy-Brain鈥, linking Hypermobility with multi-organ involvement (gastrointestinal, genitourinary, cardiovascular, autonomic nervous system, neurodivergence, and brain) in susceptible patients. Please scroll down to view the full agenda.听

We will learn about the genetics, immunology, and cytokine cascades, MCAS, and resulting dysregulation of the autonomic nervous system, GI tract, and multiple organs. The impact and importance of co-occurring neurodivergent conditions is also discussed, and the wider implications for health and education. We learn how to treat the histamine overload and dysautonomia and the resulting escalation of chronic fatigue and pain/fibromyalgia with new treatments. We also look at spike protein retention and how this might be the ultimate trigger. We will explore recent research on the origins and exacerbation of these widespread, persistent health issues, alongside potential solutions to restore patients鈥 well-being.

COVID-19 has disproportionately impacted patients with hypermobility conditions.听 hEDS / HSD is听 a heritable connective tissue disorder with weakened proteins like collagen found throughout the body. We ascertain that around 20% of the UK population, 14 million people, are susceptible to injury or illness due to having symptomatic hypermobility.

Recent studies show that those with GJH as a risk factor and already with it are 30% less likely to recover from COVID-19 infection. Post-COVID, we can still see the ongoing 'fall out' of hypermobile and neurodivergent patients. Particularly young, working-age people are rendered disabled and more women are affected than men.

This is a must-attend event for medical professionals, researchers, policy makers, educators, and patient advocates seeking to enhance their understanding of hypermobility and its complex interplay with post-COVID conditions. Attendees will gain valuable insights into early diagnosis, specialist care, and targeted interventions such as neuromodulation for fibromyalgia and chronic pain. The programme will also cover emerging therapies, lifestyle interventions, and the latest advancements in personalised patient management. Don鈥檛 miss this opportunity to stay ahead in the field and contribute to the ongoing dialogue on improving care for those with Hypermobility.

By attending, you will:

  1. Aim to identify conditions that increase susceptibility to post-COVID symptoms.
  2. Explore innovative treatments, medications, and lifestyle interventions to enhance patient well-being.
  3. Gain a deeper understanding of GJH, hEDS, and HSD and their effect on multi-organ systems.
  4. 听Understand neuromodulation as a treatment for pain and fibromyalgia.
  5. Advocate for NHS resources and funding to establish a dedicated treatment base for all affected patients.

This event will be livestreamed please click here to watch.

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We would like to thank our sponsors Novartis and UCB for their support of this event. Please note that the main scientific programme and content has not been influenced in any way by the organisations listed above.

Tickets

Standard pricing available until 10 July 2025.

Member

RSM Fellow RSM Associate RSM Retired Fellow RSM Trainee RSM Student
£96.00 £57.00 £57.00 £26.00 £10.00

Non - Member

Consultant / GP / SAS Doctors Non Healthcare Professional AHP / Nurse / Midwife Patient Advocates Trainee Student
£176.00 £141.00 £105.00 £105.00 £44.00 £20.00

Agenda

View the programme

Registration, tea and coffee
Welcome and introduction

Dr Stephanie Ann Kaye-Barrett, Honorary Treasurer, Rheumatology & Rehabilitation Section, Royal Society of 51短视频

Connections: Hypermobility, neurodivergence and post-COVID impact

Dr Jessica Eccles, FRCPsych PhD, Associate Professor (Reader) in Brain-Body 51短视频听IAT co-lead, Brighton and Sussex Medical School听Chair听, and Jane Green MBE, Fellow FCCT, MA Ed., ex-Assistant Headteacher,听Chair for neurodivergent people and hypermobility (EDS, HSD+), Awarded an MBE (2023) for services to neurodivergent people and those with hypermobility (JH EDS),听UK rep. European Federation of Neurological Associations Advisory Community Board (2025)

Questions and answers
Dysautonomia related to PoTS and Long COVID - how best to treat?

Professor Melvin D Lobo, MBChB PhD FRCP FBHS FESC FACC, Consultant in Cardiovascular 51短视频, UME Health, London

Questions and answers
The Immunology of Mast Cell Activation Syndrome (MCAS) - causes and treatments

Professor Anne Maitland, Professor of Immunology, USA

Questions and answers
Tea and coffee break
Pain management and chronic pain

Dr Helen Cohen, Immediate Past President, Rheumatology & Rehabilitation Section, Royal Society of 51短视频

Treating fibromyalgia with rTMS -neuromodulation

Dr Stephanie Ann Kaye-Barrett,MBChB, MD,FRCP, Consultant听 Rheumatologist and General Physician

Questions and answers
Lunch

Annual general meeting (Section members only)

ADHD/ASD - part of the 'Somatic Super-Syndrome'

Dr James Kustow, Consultant Psychiatrist

Questions and answers
The gastrointestinal system in hypermobility: the role of Mast Cells, COVID - 19 and the path to getting better!

Professor Qasim Aziz, Professor of Neurogastroenterology, Bart鈥檚 and the London School of 51短视频 and Dentistry, Queen Mary University of London

Questions and answers
Joint hypermobility and urogynaecology

Professor Vikram Khullar, BSc, MD, MRCOG, AKC, Clinical lead of Urogynaecology at St Mary鈥檚 Hospital, and Professor of Practice (Urogynaecology), Imperial College, London, United Kingdom

Questions and answers
Tea and coffee break
EDS and HSD 鈥 recent findings and current thinking

Associate Professor Dr. Alan J Hakim, Chief Medical and Scientific Officer, The Ehlers-Danlos Society

Questions and answers
The patients experience of all the above

Kate Toller and other representatives
PLEASE STAY FOR THIS HIGHLY INSIGHTFUL DISCUSSION

Thinking outside of the box- Resident Doctors what they need to thrive

Dame Professor Jane Dacre, President, Medical Women's Federation, Past President, Royal College of Physicians

Close of meeting

Sponsors

Location

Royal Society of 51短视频, 1 Wimpole St, Marylebone, London, W1G 0AE, United Kingdom

Registration for this event will close at 1:00am on 10 July 2025. Late registrations will not be accepted.

The agenda is subject to change at any time

If the event is recorded, we are only able to share presentations that we have received permission to share. There is no guarantee that all sessions will be available after the event, this is at the presenter鈥檚 and RSM鈥檚 discretion.

All views expressed at this event are of the speakers themselves and not of the Royal Society of 51短视频, nor the speaker's organisations.